Category: Caregiving

Living the Impossible

Impossible.

That’s what they told us. Oh, they used different words at different hospitals, but they all said the same thing. After Kevin’s devastating spinal cord injury sustained in a fall, his situation seemed hopeless. He lay paralyzed from the neck down and kept alive by a ventilator.

He was first taken to the local hospital at Lethbridge, Alberta, but was quickly transferred by helicopter to a Calgary hospital. We drove twelve hours through the night to join him after we received the call. When we arrived at the Calgary hospital the next morning, we were ushered into a gray room and joined by a gray doctor. He talked somberly about all the challenges Kevin faced. I don’t remember much of what he said to us. But his face said it all:

Expect the worst.

The second consultation was with a sour doctor who presented us with a bunch of “nevers.” Kevin would never breathe again. He would never move his body below his chin or possibly his shoulders. He might not even survive the complications of the injury. He would never go home to the United States, because no airline would take him on a flight. No medical crew would consent to accompany him, and no doctor in the States would accept him as a patient.

And, the doctor added, they didn’t have vent patients there. Kevin’s only way out was death.

But God is a God of the impossible.

We rejected this push for euthanasia, and God opened the way for Kevin to be flown back to a hospital in the United States in a chartered Lear jet, accompanied by a volunteer medical team and his brother Erik. Through the generosity of the people of Canada and here in the States, everything was paid in full. Kevin’s Canadian surgeon was a wonderful man who gave us our first ray of hope by telling us Kevin would probably survive, although his chances of recovering any function or feeling were one in a hundred. Virtually impossible.

Kevin’s trials increased after transferring to Spokane, when he experienced two respiratory codes and nearly died both times. He struggled with two bouts of pneumonia, finally stabilizing enough to be moved to a rehabilitation hospital. Along the way, he surprised the medical personnel by beginning to regain feeling and some slight movement.

Still, they reminded him that he could never wean off the ventilator. They told us that it would be impossible for us to care for him at home, and he would have to live in a nursing facility.

Our God is a God of the impossible.

Seven weeks after his injury, Kevin went home with us, his family, as his caregivers. Two years after the injury, he weaned off the vent during his waking hours, only going back on it at night to sleep. He gained more feeling and movement back in his body.

Today he can run a computer, walk with help, and do a few things for himself. Recently he began a new, self-imposed exercise regimen and has made new gains. He taught himself computer animation and 3D graphics, ran a studio with his brother, and now is the founder and senior editor of a website devoted to Christian music, http://www.cmaddict.com.

In 2008, he served as honorary groomsman at his brother Erik’s wedding. He was honorary groomsman at his friend Grant’s wedding, as well. Last September, Kevin rolled down the aisle of our church to stand beside his brother Daniel as his best man at his wedding.

Every day for twenty years, we have lived the impossible.

It has been with great joy we have watched God work in our weakness. He has given us miracles without end in this journey. Together, we have watched God bring our family closer through trial and release the fragrance of His grace in our broken lives and dreams. We have stood amazed at the tenderness and love with which our adult children have served their brother and us. We see with joy that God is building new dreams.

Yes, life has been hard. Kevin has suffered much. But he has chosen to serve God in his suffering. We have chosen to serve God in standing beside our son. The beauty we have been privileged to witness far outweighs the sorrow.

Today, on July 11, 2017, we celebrate twenty years of watching an awesome God at work. We rejoice at twenty years of life restored to our son. We look forward to the future, knowing that our Lord is still a God of miracles. Every day, in His power, we live this wonderful, impossible life together.

 

The things that are impossible with people are possible with God.

-Luke 18:27

 

 

Threads

“For You formed my inward parts; You wove me in my mother’s womb.”                                                                                                                                            – Psalm 139:13

My bones were not hidden from you when I was being made in secret, when I was being skillfully woven in an underground workshop

 -Psalm 139:15 (GOD’S WORD Translation)

You’re Complicated.

You probably guessed that. You may have even been told that a few times by a frustrated friend, co-worker, or family member. You may not have realized, though, just how complex you really are.

According to National Geographic, the average human body contains thirty trillion cells. 1. Each individual genome, or set of instructions for the development and operation of one person, contains approximately three billion base pairs of the chemical code that comprise our DNA, attached to twenty-three pairs of chromosomes. 2. This chemical code determines our sex, what we will look like, and much more. That’s why it’s called the master blueprint of the body. 3.

There is, in fact, nothing simple about the “simple cell.” Each individual cell in your body is a finely-tuned factory working closely with the other cells of the body to sustain your life. You are not generally aware of the incredible processes of the systems keeping you alive, but you know when something isn’t working correctly. The body strives to stay at a pre-set “normal,” a state known as homeostasis, and even a small change in those processes can threaten your health or your life.

All that, and you’re just one person.

On a planet filled with over seven billion people, it’s easy to feel inconsequential. It’s even easier to see others as inconsequential, especially if their lives don’t meet society’s expectations or they become inconvenient. The aged, the weak, the disabled, the unplanned, seem expendable from that perspective. What’s one damaged life out of so many?

What’s one broken thread in the fabric of God’s plan for mankind?

Only everything. Just as every thread is needed to complete a work of art by a master weaver, so every life holds an important place in His plan for the world that is and the world to come.

Complexity points to a designer. A piece of art proves the existence of an artist. We all know that an intricately woven fabric is not made by dumping a bunch of thread on a loom. Someone must create it.

You are part of a grand design.

You and I are living threads in the hands of a Creator immense in power, limitless in imagination, and exquisite in the care with which He fashions His world. The skill with which He wove you in the womb, in all its unfathomable precision, pales beside the magnitude of the loom upon which He crafts history’s story. Not only are you a vital part of that plan, so is every other human. Our job is not to decide the value of others on this earth, but to respect every person’s value before God. Only He knows which threads will display the bold, royal colors of the kingdom, and which will carry the softer shades of grace. All are needed to complete the heavenly canvas upon which His story is revealed.

You matter. So does the homeless man on the corner, the baby with Down’s Syndrome, and the elderly woman with Alzheimer’s. May God forgive us for thinking we can choose the design for Him, for believing we know best.

 

1.http://news.nationalgeographic.com/2016/01/160111-microbiome-estimate-count-ratio-human-health-science/

2.https://www.genome.gov/11006943/human-genome-project-completion-frequently-asked-questions/

3.http://science.howstuffworks.com/life/cellular-microscopic/dna5.htm

The House That Grace Built

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In a day, our world changed forever.

It was nineteen years ago this month that our son Kevin broke his neck in a fall and sustained a devastating spinal cord injury. It’s one of those anniversaries that are bittersweet. So much is so good in our lives. And yet, the loss is there every day.

I nearly forgot the day this year – a testament, I guess, to the fact that we’ve moved on in many ways. Kevin is still mostly disabled, and yet he still continues to make new gains when we least expect it. We’re still mostly caregivers. And yet, I love and appreciate life more than ever.

It’s strange and wonderful how we need both darkness and light to grow.

The end of last year began a new season for us as a family. A series of events have unfolded in a phenomenon that has, in rapid succession, answered several of my most desperate and long-standing prayers for my children and grandchildren. You know, those “the stone will have to roll away from the tomb” prayers, breathed so often I feared that I might irritate God with their frequency. They were the prayers carried in the night with a heavy heart and many tears before heaven. The ones that spring automatically to mind. You know.

Those prayers.

I prayed them for years without answers.

Then, without warning, a door opened. Then another, and another.

In August of last year, our youngest daughter Grace began a good job locally. Prayer answered.

In November of last year, we received the news that our son Erik and daughter-in-law Rachel were expecting for the first time after being told that would probably never happen. We welcomed our first grandson into the world in May of this year. Prayer answered.

In May of this year, our youngest son Daniel announced his engagement to a wonderful woman named Jenna. Prayer answered.

In June of this year, our eldest granddaughter Rebekah graduated from homeschool and was immediately accepted into the university of her choice. Her parents, our eldest daughter Jennifer and husband Scott, had sacrificed for many years and throughout many trials to educate their daughters. Rebekah is the second-generation to graduate from homeschool in our family. Prayer answered.

Their youngest daughter, Vanessa, will begin her first year of college level work as she finishes her last years in homeschool. Prayer answered.

This August, our son-in-law finally begins to see his long-standing dream of teaching become a reality. Prayer answered.

This summer, Kevin has been able, for the first time, to sit unassisted for nearly an hour at the side of his bed. This, from a man who was never supposed to move again. Ever. This, from a man who was thought – by some in the medical profession – to be better off dead. This, after nearly two decades of disability. Prayer answered.

Aaron and I continue to have the health we need to be caregivers and walk Kevin’s journey with him. Nineteen years ago, we were told it would be impossible for us to care for him at home. We live the impossible every day with him.

Prayer answered.

Living in Graceland.

A friend once told me that her daughter, who liked to come to our place and see Grace, used to call our place “Graceland.” We chuckle at the ironic designation. It seems fitting, though, because we are the house that grace built. This anniversary of Kevin’s accident is our reminder that God is always at work. Prayer is crucial, and He is never irritated that we bring our heartaches and hopes to Him.

If you’re facing impossible odds today, if darkness is all around you, lift up your head. God still answers prayer. He loves you, and He is at work in your life.

You are the house that grace built.

What One “Useless Life” Taught Me

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Just an old woman.

She lay against the stark white sheets of the gurney, her face gray and her hands bent awkwardly inward. A series of strokes had long-silenced her lilting Southern twang, and she communicated much as an infant, her cries and grunts only distinguishable to the initiated. At the sight of me, her face contorted in a pathetic wail, brownish-red drool drizzling from one corner of her mouth.

“Pneumonia,” someone at the nursing had said two hours earlier, when they first called to tell me that they were sending my mother to the hospital. I had quickly arranged my schedule to meet her at the emergency room when she arrived. My brother joined me in the waiting room, and we watched in vain for her arrival. Finally I checked again at the desk and discovered she had not yet been sent down from the nursing home.

I called the home, and they said they were still awaiting the doctor’s order to transport her down. We waited some more. I called the doctor’s office to see what was happening. No one knew. After two hours, she finally landed in the emergency room, where she lay untreated as busy nurses and techs buzzed around the nurses’ station. I could only guess they were waiting for doctor’s orders to proceed.

She continued to cry. We continued to wait. I stood at her side, stroking her hair and murmuring meaningless words of comfort as I choked back angry tears.

No one ever came in the room to care for her.

Something was definitely wrong, and I finally lost my patience. I summoned my nerve and marched out to the nurses’ station. “Is Doctor in the hospital?” I asked the startled nurses.

“Uh, I can try to page him for you,” one of them ventured.

“Fine. I want to talk to him.”

They exchanged nervous glances and had him on the phone in short order.

“This is Opal Soyk’s daughter,” I spit out. “We have been waiting hours in E.R. to have her treated. What the h— is going on?”

My rare foray into profanity surprised even me. But Doctor was up to the fight. “I wasn’t planning to bring her down here. She’s only here because you insisted.”

I was momentarily confused by the direction of the conversation. After all, I was only there because I had been called by the nursing home. What was going on? My mind raced to untangle what had happened as I asked, “Well, what are you planning to do for her?”

One worthless life…

“Nothing. I wasn’t going to treat her. She’s an old woman. Her life is useless, anyway. Why do you want to keep her alive?”

My soul exploded into little shards of red-hot pain as clarity came. He had planned to let her die untreated in her bed at the nursing home.

But this was not a useless old woman. This was my mother.

All my life, my mother had fought for me. Always, unconditionally, and without reservation, Mother had been my champion and protector. It was time to return the honor.

“That is not your decision to make,” I retorted loudly, turning heads at the nurses’ station. “Your job is to treat her.”

Doctor hung up on me.

He never did bother to show up at the emergency room. But shortly afterward, she was admitted to the hospital. With proper treatment, Mother recovered from her illness and lived some time longer before dying peacefully at the nursing home with her family in attendance.

Who Is the Lord of Life and Death?

In the months leading up to her strokes, Mother knew something awful was happening in her body. She kept it mostly secret, but looking back, I realized that she was preparing us for the inevitable. One day she told me that if anything happened to her, she wanted every chance at life. She also said, “I changed your diapers; you can change mine.”

I remembered those words after her strokes, and I was thankful to know her wishes. But I often agonized as I watched her body slowly wither away. I knew, though, that if we hastened her death, it would not be her choice, but ours. That would be neglect. Or worse.

In the long nights during those five years, I reminded God that she had taken Him to be Lord of her life. I asked Him to be Lord of her death.

The last night the nursing home called us, she had fallen into a coma after not responding to medication for a new infection. Her body showed the obvious signs of shutting down. We gathered around her bed, sang all her favorite hymns, and cheered her on. We read Scriptures to her, prayed quietly, and loved her into God’s presence.

My mother taught me how to live. She taught me how to die. And she taught me that God is the Lord of both.

The Gift of Existence

Kevin-and-Dad
Photo courtesy Grace Thorson/2016

It would have been so much easier to die.

Kevin Thorson lay paralyzed in the grass of a church lawn in Canada. Moments earlier, he was practicing backflips with a friend when he missed a rotation, fell on his head, and broke his neck nearly at his skull. As a friend ran for help, he lay there alone, not breathing, fading into blackness as he fell unconscious.

He told us later that it was at that moment, when he felt himself near death, that the presence of God came to him. The sense of the next world was intensely powerful, forever making this side of the veil seem the impostor. It would have been quick, even merciful, to have slipped quietly away to join God.

But God wasn’t there to take him to heaven.

Instead, He had a message for Kevin. A voice so real Kevin thought it was audible told him, “You’re going to be okay.”

He awakened not okay. He was in a desperate fight for his life. Emergency personnel worked feverishly to keep him alive until he could be put on life support. He endured a helicopter ride to a larger hospital in Calgary, a doctor’s push for euthanasia, surgeries, pneumonia, bronchoscopy, paralysis, loss of privacy, and much pain in the first weeks before he returned home.

Later he endured serious infections that landed him in intensive care. He had more surgeries for kidney stones. He spent two years on the ventilator before weaning off it on days, something that had been declared an impossibility by his doctors. He regained more than they expected, but not enough for a normal life.

The loss was profound. It came in layers as the reality of the depth of his disability struck home. Some days he grieved over the dreams he would never see realized. Other days he longed for just the feel of grass beneath his feet again.

But as victories came, like breathing on his own and taking his first steps and running a computer, there was a stirring in his soul. He began to truly appreciate being alive. Watching him struggle to live out his faith despite profound brokenness, I began to see how completely God had brought to pass what He promised Kevin: He would be okay.

Today I understand this: Existence, in all its facets, is a gift.

It is the man who has been told he would never breathe on his own who appreciates the feeling of air in his lungs.

It is the man who has endured great pain who appreciates a day when his body is at peace.

It is the man who once lost all feeling who takes joy in the warmth of the sun on his arms, the softness of a kitten’s fur beneath his fingers, and his legs under him again as he takes his first shaky steps.

It is the man who has had everything taken away who treasures anything given back.

It is in loss that we understand the gift.

To exist is to be. We are made in mirror image of our Creator, who calls Himself the great “I AM.” We were made to experience. We were made to feel, to love, to laugh, to hurt.

Those who say, “I would never want to live like that” must give room to those who do want to live, even if it is “like that.” The disabled and the vulnerable and the aged and the pre-born have no duty to die because their existence is inconvenient for others.

Yes, it would have been easier for Kevin to die that awful day in 1997. But what richness of life we would have missed in knowing him. The world is a better place because he exists.

Crying in the Wilderness: Why Every Life Matters to Me

Erik Thorson 2015
Erik Thorson 2015

THE VOICE OF ONE CRYING IN THE WILDERNESS,
‘MAKE READY THE WAY OF THE LORD, MAKE HIS PATHS STRAIGHT.’ -Mark 1:3

Today my heart is broken.

I haven’t watched the video. But a description of its contents is enough to send me reeling. The revelation of a doctor’s extraction of the brain of an aborted fetus while its little heart still beat inside its dying body has pushed me over the edge.

Over the edge of every good reason I had to stay silent. Plunging down the chasm of my vanity, the worry over my image as an author and speaker. Past the safety net of positivism.

I spent the day grieving, just flat-out brokenhearted over what we have become as recent undercover videos of abortion practices and the sale of fetal body parts has revealed the seedy underbelly of the death industry.

Kill. Harvest. Clean up the blood. Dispose of the body.

Go to lunch and arrange another sale.

She eats, wipes her mouth, and says, “I haven’t done anything wrong!” -Proverbs 30:20 (God’s Word Translation)

Over twenty years ago, a doctor in an emergency room told me he didn’t plan to treat my disabled mother’s pneumonia because, in his words, “Her life is useless.” Eighteen years ago, a doctor in Canada wanted us to pull the plug on our paralyzed son because his life would be worthless.

I fought for my mother to live her final years in dignity. I have fought hard for my son to live well in his broken body. Along the way I’ve learned much about this fierce and glorious and fragile breath we call life.

The gift is so beautiful that I even have a hard time taking it from the critters that complicate our country living. I’d rather whisk a spider back outside than squish it. I used to designate all snakes as being either “one-rock” or “two-rock.” The big ones took two rocks to kill. Recently I walked past a little bull snake lying on our rock wall as it cooled off in the sprinkler.

I left it alone. It wasn’t a good morning for anything to die.

Though I have been destined to fight for the lives of those I love, I have long resisted God’s call to speak out against the culture of death publicly, out of fear of being seen as negative or political. No more. I no longer care what anyone thinks of me.

When Is Silence Evil?

A fierce national spirit and reluctance to actively protest the agenda of the Nazis kept the German church largely quiet against the genocide by their leaders. Few Christians had the courage of Dietrich Bonhoeffer, a German theologian who ultimately was killed by the Nazi regime for his participation in the resistance against Hitler.

Silence in the face of evil is itself evil: God will not hold us guiltless. Not to speak is to speak. Not to act is to act. – Dietrich Bonhoeffer

Today genocide is rampant across the globe. Some kill in the name of God. Others kill in the name of ethnic cleansing. In developed countries, we routinely kill the pre-born, the aged, the disabled in the name of compassion. Call it “women’s health” or “death with dignity.” Someone still dies, and someone profits.

Are we any better than Hitler? Or are we any better than a church that, for the most part, kept quiet as people were experimented on and gassed and skinned to make lampshades?

I have always been pro-life. But it became personal for me the day a doctor wanted to dispatch my mother because she was in the way. It became personal for me the day a doctor wanted to dispatch my son because his organs were more valuable to society than his life.

I realize my voice is a small one. It isn’t likely many will even read this post, much less feel compelled to act upon it. But I must add my voice to those rising to fight for compassion. I will fight with my last breath for the lives of those without a voice in this wilderness.

Why does every life matter to me?

It matters to God.

Will you stand with me? Will you educate yourself and speak out and support the families of the voiceless?

Next: Embrace the Pain.

 

 

Spinning My Tires

spinning wheels pic

 

Around and Around

It should have been a banner year. How many people get to be authors? And have an article published in a print magazine? And get to work at a job they love? How many parents see their children and grandchildren living solid lives of faith and hope?

  • This year I had the honor of working with my daughter Grace, who, by the way, is the best office assistant/publicist ever.
  • I had the joy of seeing our youngest son get his own place and grow in a job he loves.
  • I celebrated when our eldest granddaughter was accepted into the college of her choice.
  • I joined my beloved family for a nine-day trip to my favorite Pacific beach and attended my first Hot August Nights car show in my hometown.
  • My precious husband and I celebrated forty-two years of marriage with a two-day trip to the Big Town, where we got our Cabela’s fix and my husband finally bought a buffalo picture. He’s maintained for years that a log home needs a buffalo pic. I maintained otherwise. We finally agreed on one that would nicely grace the upstairs hall at the top of the stairs. At a vintage lamp shop downtown, I bought my first Quoizel Tiffany lamp, something I’d been coveting  for several years.
  • The ancient mint and green carpet in our house is giving way to a handsome porcelain slate tile that will hold up better to country living, wheels, and our son’s German Shepherd/cross dog.
  • I’ve been able to share our story and God’s comfort with others through my writing and speaking. My first book, Song in the Night, recently was re-released in e-book form. I’ve met and re-connected with many wonderful people and heard inspiring stories of faith across this country.
  • I even learned how to use Google+ Hangouts to make a video presentation at a virtual caregiving conference, no small feat for a sixty-year-old woman who still struggles with the t.v. remote.

Yes, 2014 should have been a great year. In fact, it has been. And for that I’m eternally grateful to my Savior.

So why did I lose steam mid-summer? Why did I feel like I was spinning my wheels?

Mostly, I think, it was because in the midst of everything else, I am, first, a caregiver. Everything that I do comes after and along with my caregiving duties. Simple things like a trip to town involve a a lot of work and planning.

Every step is hard work. Every victory comes with much warfare. The joys have been interwoven with sorrow.

We lost Aaron’s beloved mother in January; my dear uncle in July. Kevin had an infection and sternum injury in May. He received emergency care during our coastal trip and again back at home. My father endured a hard winter of medical struggles. Then I suffered a severe lumbar strain and was completely out of commission for a few weeks. The family had to take up the slack in the daily chores.

It was during that time down in bed that I finally could stop. The enforced rest gave me a chance to re-think what I’ve been doing and what I want to achieve. One thing I know for sure:

I never want to be spinning my wheels on this journey. I want to listen carefully to God and only go where He guides. That may not mean a smoother ride. In fact, that may only increase the warfare in my soul and on the home front.  The road to Zion is narrow and often filled with detours. I’m thankful to be on this trip, though. My destination is assured; a room in God’s mansion is already reserved for me heaven. It’s just a matter of staying on course, listening for God’s guidance, and remembering to enjoy the view along the way.

I will not spin my tires.
I will not spin my tires.
I will not spin my tires.

Photo courtesy Kevin Thorson/copyright 2014

Out from the Shadows Book Excerpt

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Today we celebrate the release of Out from the Shadows by Lighthouse Publishing of the Carolinas. Many thanks to my publisher, associate editor, agent, and my friends and family. I’m so grateful to God for His inspiration, leading, and encouragement throughout the long two years it took for it to come to birth.  In celebration of the launch, I just had to share an excerpt from the book with you. This one is very special to me.

Jimmy’s Hunger

A good name is to be more desired than great wealth. Proverbs 22:1

He was just a little boy when he was abused for the first time. His dad raged at his mother again over some imagined offense—the rough German carpenter never needed a reason to be angry. The tiny house rattled with the sounds of the man’s raving.

Jimmy was afraid.

Suddenly his father turned on him. The man hit the child broadside, striking him so hard he slammed backward against a wall and soiled his pants. Jimmy never knew what he had done to deserve a beating.

But that was just the beginning. He grew to manhood under the constant shadow of a father given to adultery and violent, drunken rages. The entire family suffered, but the boy was the favorite target of his father’s wrath.

When the man wasn’t beating them, he was often gone. Jimmy helped his mother support the family with his meager earnings from odd jobs. Their food supply was scanty, and their threadbare clothing offered little protection from the brutal Wisconsin winters. Jimmy owned no underwear. He slept naked in order to save his one set of clothes for school. His father loved to shame him by yanking him out of his bed in the middle of the night and beating him in front of his mother and sisters.

The physical abuse stopped the night Jimmy was big enough to sit in the dark, fully dressed, to initiate the fight when his dad first walked through the door. He learned, too, how to stop the mocking boys at school with his fists.

Fighting gave him a feeling of power for the first time in his life. People said he would grow up to be just like his dad. He had learned all the wrong ways to live. He had every excuse to victimize others as he had been victimized.

But he didn’t. Jimmy grew up to be like his mother, gentle and kind. He finished his schooling in the Navy, married a lovely young woman, and started a family. He adored his children and worked hard to give them the stability he never enjoyed as a child. He became a musician, a newsman, a broadcaster, a businessman, a county commissioner, a caregiver, and a pastor.

Jimmy is my father.

If anyone ever had an excuse to give up, he did. He had nothing going for him in life, except a mother who loved him and the desire to be different from his father and his grandfather. Instead of continuing the family line of shame, he taught my brother and me an important lesson: It’s not where you come from, but where you’re headed, that matters.

When my father was growing up, children shouted our surname at other kids when they wanted to insult them. My father was determined to have a name his own children would never be ashamed to wear. He not only redeemed the family name, but he also has lived with such integrity that we are proud to be known by it.

Today, his adult grandchildren love to tell people who their grandpa is. He is a well-known local personality and beloved icon in our community. As a pastor, he tells others of the Father God who took him out of a life of poverty and abuse and gave him a real daddy’s love.

My dad’s hunger for God inspired my own search for life’s meaning. His determination to break free has challenged me to wear my heavenly Father’s name with integrity and leave a legacy my family can be proud to claim.


Father God,

I understand my perception of You
has been shaped by my earthly father.
I ask You to reveal to me the ways
in which I have misunderstood who You are.
Help me break free from wrong pathways
and understand the depth of Your unconditional love.
Amen.

Reflections on “Jimmy’s Hunger”

1. Do you know anyone who has a similar story of abuse?

2. Have you experienced this kind of abuse yourself? Have you been able to break free?

3. List the qualities of a father you think are the most important.

4. In what ways has God displayed these qualities in your life?

5. How can you use these qualities in your role as a caregiver?

Pam Thorson/copyright 2014

Find Out from the Shadows here: http://www.amazon.com/dp/194110312X/

The Nurse Who Remembered

 

http://www.dreamstime.com/stock-images-equipment-ventilation-patient-operating-image18733114

This post is part of the #Blog4Care blog carnival being hosted by Caring Across Generations. We’re hoping that by sharing our caregiving stories, we can begin to come up with solutions to the care crisis that is affecting millions of Americans. 

Nursing carries heavy responsibilities. It requires long days, longer nights, and impossible schedules. In celebration of one of my favorite nurses, I’ve reprinted an except of our story from my first book, Song in the Night. The nurse’s name has been changed, but everything else is as it happened in the summer of 1997.

More than just a nurse…

One nurse in particular that we loved was named Mandy. She was slender and petite, with lovely dark hair and makeup that was always perfect. She had an exotic air and a husband who was a businessman in Africa. She always seemed to know what to do and did it expertly. Kevin said that she did the best job of suctioning the secretions out of his lungs of anyone on the floor, so I watched her carefully and had her teach us her own technique.

One day in particular, things were very trying. Kevin was still stick, and I just had to go run a quick errand. There was no other family member to stay with Kevin while I was gone, and Kevin kept begging me not to leave him. Mandy saw my dilemma and offered to sit with Kevin until I came back.

Thankfully, I took her offer and rushed out. I knew she was busy, and Kevin wasn’t the only patient that needed her. So I hurried as fast I could and breathlessly returned to find her sitting peacefully at his bedside, chatting amiably with Kevin as she gave him a manicure.

A warm rush of gratitude flowed over me. She could not have realized how little of our human dignity was left after these long weeks. The harsh environment of living in the world of the near-dead had ground us far into the dust. Although people around us had been so good to us, and most of the medical people tried, the very nature of the situation was immensely dehumanizing. We existed on little food, sleep, or comfort. Rehab schedules did not allow time for living. Whoever was staying with Kevin slept on a big chair that folded out into a small bed that was in his room. We often slept and lived in the same clothes. Our world revolved around learning a myriad of medical procedures, basic caregiving, and getting Kevin through another day.

There wasn’t time to truly grieve, to hurt, to process what was happening, or even to feel. We were often treated like machines, pushed and prodded and educated in things we neither envisioned nor wanted to learn. There were days Aaron and I didn’t know who was taking care of our youngest daughter or even where she was. That haunted me, and it caused recurring nightmares in which I had lost her. For a while, she bounced between friends and family. At fifteen, Daniel was learning physical therapy techniques and sitting long hours with his brother. Erik worked full-time down in Lewiston and drove the 100 miles to Spokane every weekend to be with us.

More than “the C2” in Room 210…

I understand that by necessity, the medical world is run by schedules and operates under financial limitations. Faced with the politics of medicine, it’s easy to reduce a patient to “the C2” in Room 210 or “the gallbladder” on the fourth floor.

But Mandy had remembered that we were more. She remembered that we were people – hurting, frightened, and overwhelmed. And she cared enough to stop and give us the help we really needed.

~ Pam Thorson

Podcast March 1st

 

http://www.dreamstime.com/royalty-free-stock-photography-microphone-stage-spotlight-blue-curtain-image14819847

Join me for a podcast with Denise Brown of Caregiving.com on Saturday, March 1 at 10 a.m. ET (9 a.m. CT; 8 a.m. MT; 7 a.m. PT). Listen live or download the podcast here:
http://www.blogtalkradio.com/caregiving

Denise is the founder of a vibrant online community of caregivers. I’m honored to join her for an interview tomorrow morning as I share the story surrounding our son’s disability and my perspectives on caregiving.

Hope to see you there!

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