Tag: caregiving

Beauty from Ashes: A Story of Provision and Forgiveness with Barb Farrington and Katie Tweit

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Today I have the honor of introducing a very special family to you: Barb Farrington and her daughter Katie Tweit. Katie suffered a traumatic brain injury in a car accident in 1998. Barb is Katie’s primary caregiver and cares for her in their home in northern Idaho. In this three-part series, Barb shares her very personal story of heartache, restoration, and forgiveness.

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The Accident: Angel on Her Shoulder

It was April 8, 1998. Barb and her husband of one year, Rex, were having a branding on the Oregon ranch. Barb tried to get her eighteen-year-old daughter Katie to come up to help with the cooking for the event. Katie’s roommate, Frances, was coming up to ride and rope cattle.

Katie had just landed a new job at a local farm supply company and was going to school at Treasure Valley Community College in Ontario. Oregon. She decided to stay and work at her new job.

The call for Barb came around 9:00 p.m. It was her ex-husband Ron, Katie’s dad. He told her that Katie had been in a serious car accident. She was being life-flighted to St. Alphonsus Hospital in Boise, Idaho, because they had an advanced trauma center.

Barb knew that meant it was bad. She had been told that no bones were broken, which could only mean that Katie had suffered a head injury. She tried to get more information from the hospital, but no one would give her much information over the phone. They didn’t sound encouraging, though.

It was an awful two-hour drive to the hospital.

When Barb, Rex, and Ron arrived at the hospital, they learned more about what had happened. Katie was the passenger in a car driven by a young man who had been drinking. He was driving 110 miles an hour when he lost control of the care. He had been thrown clear. Katie had not.

The doctors had argued about whether they should try to save her.

The accident was terrible. Barb was told that when emergency personnel arrived on the scene, Katie had “death rattles.” She wouldn’t have lived much longer. Barb also discovered that before she arrived at the hospital, the doctors had argued about whether or not to save her. One doctor was adamant that they shouldn’t try.

The medical team had made the decision together to make the attempt. One of the nurses on the trauma team came to visit Barb later. She told her that as they debated Katie’s care, she felt that there was an angel on Katie’s shoulder, protecting her. The nurse just couldn’t push for a decision to let her go.

Barb and Ron were never given an opportunity to decide whether or not to fight for Katie to live. That decision was made before they arrived at the hospital.

The first time Barb walked into Katie’s room, Katie was unrecognizable. Her face was swollen; they’s had to shave part of her hair off to put a pressure monitor into her head to keep an eye on the the swelling in her brain. They weren’t allowed to touch her or talk to her, because any kind of stimulation would be detrimental to her at this point. She wasn’t breathing on her own and needed a ventilator.

No Hope

Katie’s family was given no encouragement about Katie’s prognosis. “It was such a hard time,” Barb says, “We were given absolutely no hope. Nothing.”

One doctor did say that the worst case scenario was that she would never be better than she was at the moment. The best case scenario was that she might walk or talk again. There were no guarantees.

Katie didn’t look good, either. She didn’t respond to others and appeared to be asleep. Her family was told that the first three or four days would be crucial. Most of Barb’s family were in Mexico to attend her nephew’s wedding, held, ironically, on the same day as Katie’s accident. It was difficult to contact them with the news. But Barb was soon joined by her sister, son Andrew with his wife Angie, and daughter Heather.

At the hospital, Barb saw people come in and be released. She saw others that came in and didn’t make it. It was her sobering reminder that God is not a respecter of persons. “You just never know how your situation is going to turn out.” Barb could only wait and pray.

 

Photo of Barb and Katie courtesy Grace Thorson

Out from the Shadows Book Excerpt

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Today we celebrate the release of Out from the Shadows by Lighthouse Publishing of the Carolinas. Many thanks to my publisher, associate editor, agent, and my friends and family. I’m so grateful to God for His inspiration, leading, and encouragement throughout the long two years it took for it to come to birth.  In celebration of the launch, I just had to share an excerpt from the book with you. This one is very special to me.

Jimmy’s Hunger

A good name is to be more desired than great wealth. Proverbs 22:1

He was just a little boy when he was abused for the first time. His dad raged at his mother again over some imagined offense—the rough German carpenter never needed a reason to be angry. The tiny house rattled with the sounds of the man’s raving.

Jimmy was afraid.

Suddenly his father turned on him. The man hit the child broadside, striking him so hard he slammed backward against a wall and soiled his pants. Jimmy never knew what he had done to deserve a beating.

But that was just the beginning. He grew to manhood under the constant shadow of a father given to adultery and violent, drunken rages. The entire family suffered, but the boy was the favorite target of his father’s wrath.

When the man wasn’t beating them, he was often gone. Jimmy helped his mother support the family with his meager earnings from odd jobs. Their food supply was scanty, and their threadbare clothing offered little protection from the brutal Wisconsin winters. Jimmy owned no underwear. He slept naked in order to save his one set of clothes for school. His father loved to shame him by yanking him out of his bed in the middle of the night and beating him in front of his mother and sisters.

The physical abuse stopped the night Jimmy was big enough to sit in the dark, fully dressed, to initiate the fight when his dad first walked through the door. He learned, too, how to stop the mocking boys at school with his fists.

Fighting gave him a feeling of power for the first time in his life. People said he would grow up to be just like his dad. He had learned all the wrong ways to live. He had every excuse to victimize others as he had been victimized.

But he didn’t. Jimmy grew up to be like his mother, gentle and kind. He finished his schooling in the Navy, married a lovely young woman, and started a family. He adored his children and worked hard to give them the stability he never enjoyed as a child. He became a musician, a newsman, a broadcaster, a businessman, a county commissioner, a caregiver, and a pastor.

Jimmy is my father.

If anyone ever had an excuse to give up, he did. He had nothing going for him in life, except a mother who loved him and the desire to be different from his father and his grandfather. Instead of continuing the family line of shame, he taught my brother and me an important lesson: It’s not where you come from, but where you’re headed, that matters.

When my father was growing up, children shouted our surname at other kids when they wanted to insult them. My father was determined to have a name his own children would never be ashamed to wear. He not only redeemed the family name, but he also has lived with such integrity that we are proud to be known by it.

Today, his adult grandchildren love to tell people who their grandpa is. He is a well-known local personality and beloved icon in our community. As a pastor, he tells others of the Father God who took him out of a life of poverty and abuse and gave him a real daddy’s love.

My dad’s hunger for God inspired my own search for life’s meaning. His determination to break free has challenged me to wear my heavenly Father’s name with integrity and leave a legacy my family can be proud to claim.


Father God,

I understand my perception of You
has been shaped by my earthly father.
I ask You to reveal to me the ways
in which I have misunderstood who You are.
Help me break free from wrong pathways
and understand the depth of Your unconditional love.
Amen.

Reflections on “Jimmy’s Hunger”

1. Do you know anyone who has a similar story of abuse?

2. Have you experienced this kind of abuse yourself? Have you been able to break free?

3. List the qualities of a father you think are the most important.

4. In what ways has God displayed these qualities in your life?

5. How can you use these qualities in your role as a caregiver?

Pam Thorson/copyright 2014

Find Out from the Shadows here: http://www.amazon.com/dp/194110312X/

The Nurse Who Remembered

 

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This post is part of the #Blog4Care blog carnival being hosted by Caring Across Generations. We’re hoping that by sharing our caregiving stories, we can begin to come up with solutions to the care crisis that is affecting millions of Americans. 

Nursing carries heavy responsibilities. It requires long days, longer nights, and impossible schedules. In celebration of one of my favorite nurses, I’ve reprinted an except of our story from my first book, Song in the Night. The nurse’s name has been changed, but everything else is as it happened in the summer of 1997.

More than just a nurse…

One nurse in particular that we loved was named Mandy. She was slender and petite, with lovely dark hair and makeup that was always perfect. She had an exotic air and a husband who was a businessman in Africa. She always seemed to know what to do and did it expertly. Kevin said that she did the best job of suctioning the secretions out of his lungs of anyone on the floor, so I watched her carefully and had her teach us her own technique.

One day in particular, things were very trying. Kevin was still stick, and I just had to go run a quick errand. There was no other family member to stay with Kevin while I was gone, and Kevin kept begging me not to leave him. Mandy saw my dilemma and offered to sit with Kevin until I came back.

Thankfully, I took her offer and rushed out. I knew she was busy, and Kevin wasn’t the only patient that needed her. So I hurried as fast I could and breathlessly returned to find her sitting peacefully at his bedside, chatting amiably with Kevin as she gave him a manicure.

A warm rush of gratitude flowed over me. She could not have realized how little of our human dignity was left after these long weeks. The harsh environment of living in the world of the near-dead had ground us far into the dust. Although people around us had been so good to us, and most of the medical people tried, the very nature of the situation was immensely dehumanizing. We existed on little food, sleep, or comfort. Rehab schedules did not allow time for living. Whoever was staying with Kevin slept on a big chair that folded out into a small bed that was in his room. We often slept and lived in the same clothes. Our world revolved around learning a myriad of medical procedures, basic caregiving, and getting Kevin through another day.

There wasn’t time to truly grieve, to hurt, to process what was happening, or even to feel. We were often treated like machines, pushed and prodded and educated in things we neither envisioned nor wanted to learn. There were days Aaron and I didn’t know who was taking care of our youngest daughter or even where she was. That haunted me, and it caused recurring nightmares in which I had lost her. For a while, she bounced between friends and family. At fifteen, Daniel was learning physical therapy techniques and sitting long hours with his brother. Erik worked full-time down in Lewiston and drove the 100 miles to Spokane every weekend to be with us.

More than “the C2” in Room 210…

I understand that by necessity, the medical world is run by schedules and operates under financial limitations. Faced with the politics of medicine, it’s easy to reduce a patient to “the C2” in Room 210 or “the gallbladder” on the fourth floor.

But Mandy had remembered that we were more. She remembered that we were people – hurting, frightened, and overwhelmed. And she cared enough to stop and give us the help we really needed.

~ Pam Thorson

Podcast March 1st

 

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Join me for a podcast with Denise Brown of Caregiving.com on Saturday, March 1 at 10 a.m. ET (9 a.m. CT; 8 a.m. MT; 7 a.m. PT). Listen live or download the podcast here:
http://www.blogtalkradio.com/caregiving

Denise is the founder of a vibrant online community of caregivers. I’m honored to join her for an interview tomorrow morning as I share the story surrounding our son’s disability and my perspectives on caregiving.

Hope to see you there!

Coming Soon: Out from the Shadows: 31 Devotions for the Weary Caregiver

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Coming Soon…

 

Out from the Shadows: 31 Devotions for the Weary Caregiver

 

 

No place is so dark, no shadow so deep, that God can’t find us…

 

 

 

 

 

 

 

 

After nearly two years in the making, my newest book is almost ready for its March release. The editors and design team at Lighthouse Publishing of the Carolinas have done a masterful job of guiding me through the process. Although this is my second book, I’ve discovered that traditional publishing is much different than self-publishing. I’ve had a lot to learn. It’s been hard work, too, but I’m honored to have this opportunity to share with others.

       “There are only four kinds of people in the world: Those who have been caregivers, those who are currently caregivers, those who will be caregivers, and those who will need caregivers.” -Rosalynn Carter

If you’re not a caregiver now, it’s likely that you have taken care of someone you love at some point in your life. You know the daily stresses they endure.

Perhaps you know someone who cares for a family member or have received care when you were injured or ill. Out from the Shadows is a collection of thirty-one stories that pull back the veil on the unique joys and challenges of caregiving. Why not refresh someone you know with a gift of hope? Out from the Shadows is now available for pre-order at amazon.com. Order early and save $.99 over the regular price.

We still have a lot to do before the book launches. Dragonfly Core is producing a book trailer which I’m very excited about. It will feature some people I love and tell a story I’ve been dying to shout to the world:

Caring for others is one of the most important jobs you will ever have.

 

God IS in Control

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 God…is the blessed controller of all things. 1 Timothy 6:15 (Phillips)

God IS in Control

What a year it has been already! There have been some sad events: burying my mother-in-law, watching my father suffer through a serious infection. There has also been a rumbling in our lives as the stone has been rolled away from the tomb of some long-standing dreams. I can’t share the details, but I have witnessed enough miracles in the last month alone to move me to tears and remind me that God is a God of wonders.

When He closes a door, it’s closed. Solid. No amount of moving or praying can budge it.

When He opens a door, it’s flung wide to let in the fresh air of hope.

Whatever’s going on in your lives, rest in the trust that God does hear your prayers. And He really cares about you. As I’ve shared in the last couple of weeks in recent devotionals When Dead Men Speak and Beyond the Grave at CMADDICT.com, God moves in sovereign and powerful ways far beyond our ability to imagine.

Events of these last weeks have encouraged me to step out more boldly in His steps. It’s a fearsome thing to follow behind the Savior, knowing all He gave up to answer His Father’s call. But it’s more frightening to remain in the shadows of my faith, where fear rules the night.

Come with me, my friends. Let’s push aside the stumbling blocks that have kept us from being all God has called us to be. We can serve with joy, knowing our struggles are not in vain. He is still “the blessed Controller of all things.”

Do you know someone who takes care of a loved one?

Can you imagine how hard it is for them to make it through another day?

You can help! I still need people to join my team for the launch of my new book, Out from the Shadows: 31 Devotions for Weary Caregivers. You don’t need special skills or a great social media following to help. Just read my previous post (click here) and pick 5 ideas there or send me 5 of your own ideas and you’re on the team. There will be a drawing for a Kindle Paperwhite e-reader in March for those who become team members. E-mail me at thesong2008@live.com and put “Influencer Request” in the subject line. Thanks!

What They Didn’t Tell Us

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Until our nineteen-year-old son broke his neck in a fall in the summer of 1997, we knew little about spinal cord injuries. His break was very high, and the chance of his survival was bleak. Since he was injured during a trip to Canada and we live in the United States, it was a difficult journey to join him at the hospital. When we were able to get to his bedside, we found him totally paralyzed from the neck down and attached to life support.

Grim-faced doctors told us the many challenges Kevin faced:

  • He would never breathe or move again below his neck or possibly his shoulders.
  • He would need round-the-clock care.
  • He would certainly suffer from a host of complications such as pneumonia, blood clots, and urinary tract infections.
  • He could never live at home again. He couldn’t even return to the United States because no airline would accept him in his condition, no doctor would sign to receive him, no medical team would accompany him on the flight, and the cost to fly him home would be prohibitive.
  • He could not stay in Canada.

For our son, and for us, the situation seemed hopeless. One doctor was angry when we resisted a push for euthanasia.

What most of the doctors didn’t tell us was that their predictions weren’t written in stone. Yes, Kevin did suffer from pneumonia in the beginning weeks. Urinary tract infections have been a continuing challenge for Kevin. And yes, he needs round-the-clock care.

But none of the rest of it happened.

People, churches, and organizations in Canada soon learned of his injuries and rallied to his cause. Within a week, Kevin was flown back to the United States in a chartered Lear jet, accompanied by a volunteer medical team – the entire cost paid by donations.

He was received into a hospital close to home and later released to a rehabilitation hospital.

As his body came out of spinal shock, he began to regain function and feeling, stunning the doctors and therapists. This healing would continue for several years.

What no one told us was that one day Kevin would breathe again on his own, walk with help, and return home to rebuild his life. Although he remains mostly disabled, he has movement and feeling in most of his body. He only uses the ventilator at night to sleep.

In the years since his injury, he has built a computer 3-D graphics studio with his brother and founded a popular Christian music website. He lives each day with faith and trust and without complaint.

No one told us that caring for him would bring us such joy. No one explained how much his life would enrich us, or how much we would learn about courage in the process. Certainly these years have been hard. But when I see Kevin laughing and chasing his nieces around in his wheelchair, or taking his dog for a walk, or working with press agents and music companies and complicated animation software, I am reminded of all the beauty they never told me to expect.

They never told us to have hope.

To Kill the Longing

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We inched down the winding mountain pass toward the ocean, smothered in a thick fog. After ten hours on the road through a fierce thunderstorm, our nerves were frayed. We rounded a curve and our headlights caught a raccoon in the middle of our lane.

The light dissolved his eyes into a watery green glow. He reared up in hapless defiance and raised his little paws as if to fend us off.

My husband swerved, barely missing.

So far, it was the most positive thing that had happened on the trip.

It was our first real family vacation in sixteen years. A generous cousin offered us the use of their beachfront rental for a week on the Oregon coast. Knowing a trip of that length would test our ability to travel with Kevin’s extensive medical needs, we planned as carefully as we could.

Then the week before the trip, The Resistance began. Aaron’s mother had a medical emergency and was ordered by her doctor to go immediately into an assisted living center. The family was inundated with a myriad details to get her moved within a few days.

The day before we left, we were still taking care of her issues while trying to pack. That night, there was a thunderstorm, taking out the power for two hours. Since Kevin sleeps on a ventilator at night, we had to switch his equipment over to emergency power and watch to make sure he was okay.

We left the next day after a few hours of sleep. Immediately out of the driveway, our nearly new van flashed a warning light. We spent an hour in town getting it checked out.

Back on the road again, we watched an ominous storm gather around us. It descended in earnest over the Columbia Gorge. A gale slammed us sidelong and threatened to blow us off the road. Lightning hit so close we actually had to try to keep from touching anything metal inside the van. Thunder boomed above our heads.

We hit Portland during rush hour. “Margie,” our little GPS guide, taunted us by commanding us to crisscross between lanes of heavy traffic. We turned her off and found our own way.

We finally made it to the coastal highway, only to be hit with a heavy rain. As we inched down the winding mountain pass, we were wrapped in a heavy fog.

We arrived at our lovely beach house shaken but unhurt. Our son and daughter-in-law arrived a few hours later, telling much the same story.

“It felt like something out of ‘This Present Darkness,’ ” my daughter-in-law mentioned.

Bingo.

All the time I thought it was just me. The warfare was so intense, it was insane. It didn’t make sense.

My first thought was, “It’s not like it was a Billy Graham Crusade. Why should the devil care that we’re going on vacation?”

Before the week was over, however, I realized why the battle to get there was so fierce. It was a truly blessed time. We played together and prayed together. God spoke to us in the Christian music, the fellowship, the laughter, and the peace. We stood on the beach and listened to the sea. We watched the sun set the water on fire every evening and gloried in the blaze as it sank into the horizon.

I got to see my beloved extended family again. We swapped family stories and laughed and cried until it hurt so good.

In Brazil they use the phrase “Matar saudades.” It literally means, “to kill the longing.” For sixteen years, we have lived in the valley of the shadow. Life has been hard. Many of the simple joys have gone by the wayside as we struggled to make it through each day. For the most part, we’ve adjusted to our new normal and submitted to the discipline it takes to keep Kevin healthy.

We’ve learned to accept hardship as our path. We didn’t expect to encounter something so extravagant, so rich, so abundant. To be blessed with such generosity. To be alive just for the fun of it. To kick sand in the face of loss.

Now I know why it was such a struggle to get here. This was more than a vacation. We came to kill the longing.

 

Photo courtesy Grace Thorson 

 

Recently I had the honor of being featured in an interview with author Aaron Gansky. Check out the interview at http://aarongansky.com/author-spotlight-pamela-thorson/.

You are Invited

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If you’re reading this today, you’re alive.

Maybe you don’t feel that way.  Instead, you’re barely holding on. You feel numb, unworthy of God’s love.

It’s especially easy to feel that way if you’re one of the thousands of people suffering from chronic disease or devastating injury. Perhaps you’re one of the millions of people who care for them. Either way, you’ve forgotten what it’s like to have what most would call a “normal” life.

Boy, have I been there.

Our son’s spinal cord injury in 1997 plunged him into the world of disability and dumped me into the world of caregiving. I quickly learned that the fight for life is as primal as it gets.

It’s a lonely trip. It’s an honor. It’s a tightrope walk between the two stretched over a chasm of uncertainty.

Today I’ve served more than two decades as a caregiver. Every step of the journey, God has held us, even when I didn’t know He was there. His comfort has been the golden oil sustaining me through every trial. He has taught me to relish each day I can breathe and think and worship my Creator.

Rejoicing in the Lord always.

Trusting in a faithful Father for tomorrow.

Life is a gift, an invitation to a very special party. Let’s treasure what we have this moment and believe God will keep eternity safe for us, for the day when the lame walk and God dries our tear-stained faces.

That day’s coming. Until then, we will conquer whatever comes, together. No matter what you’re going through right now, you can be assured you are never, ever alone. You’re important to God, and you’re important to me.

You’re alive. You’re safe. You’re precious in His sight. 

That’s worth singing about. Come on, join the celebration!

5 Ways to Ease Caregiver Strain

 

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My latest issue of Nursing 2013 came in the mail yesterday. Usually I set magazines aside for later reading, but the title article on this one caught my eye immediately:

Easing the burden on family caregivers

I’ve been a full-time caregiver of a high-level quadriplegic son for sixteen years. I love my job, but I’m always willing to learn anything to ease the workload. I grabbed it and scanned past the clinical stuff to get to the end. I wanted to see what their ideas were for “easing the burden.”

As I guessed, there was no magic bullet, no miraculous new methods for helping family caregivers. There were, however, some things worth noting. Today I’ve pulled out a few of their ideas and added a few things we’ve learned over the years to share with those who care for loved ones.

5 Ways to Ease Caregiver Strain:

1. Learn to depend on others for help.

Caregiving is a marathon. No one can take on such duties day after day after day without respite or assistance. It’s hard to ask others for help, to feel needy. But those around you may wish they could help somehow and just not know what to do. If you’re not comfortable with having them take over the actual caregiving duties, you could see if they would be willing assist you in chores once in a while. If you have the financial resources, you can also pay for such chores as yard work and picking up groceries to save valuable time and energy.

Getting help not only relieves the physical burden, it allows both caregiver and patient a chance to interact with others, a vital necessity for both physical and emotional health.

2. Adapt an assertive, rather than a passive, coping style. 

Those who are naturally more passive are more susceptible to crumbling under the burden of caregiving. They tend to stay isolated, worry more, ask fewer questions, and develop a negative attitude.

A healthier coping lifestyle involves actively taking charge of the situation, asking questions and pursuing the answers that will benefit both the caregiver and the patient.

3. Learn all you can.

Understanding what is happening to your family member is crucial to providing the best care with the least amount of emotional strain. Research the disease process or injury, available treatments, and the usual prognosis. It’s especially important to know such basic techniques as how to correctly turn a person in bed, infection control, and bed sore prevention. Know what community, church, and government resources are available.

4. Be kind to yourself.

Caregivers often put the needs of their loved ones ahead of their own needs. In order to take good care of others, you need to be good to yourself, as well. This is easier said than done, since it’s often hard to find time for anything besides work. Try to give yourself permission to care for you. Your family member needs for you to be well.

Hospital emergency departments employ a term called “triage” to decide which patients should be treated first. The idea is to put the most important cases at the front of the line. Do this with your life. Develop your own triage system to care for the “worst first” in your day. If a chore can wait until tomorrow and you’re exhausted, put it at the end of the line. This works well for emotional issues, too. Don’t waste your tears on things that aren’t worth your energy.

5. Talk to someone.

Develop an emotional support system. Have at least one or two people who you can call when you need to cry, vent, or just talk. Don’t just run to those who will agree with everything you say, though. Develop friendships with those who will listen and speak the truth. It’s a two-way street; engaging with others gives our lives new perspective. It may even ignite a fresh appreciation for all we have gained through our own situations.

 

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